Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders
The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration. This community is sponsored by the …
Heds and mental health: what's the connection? - Ehlers ... - Inspire
Feb 20, 2025 · However, based on the updated diagnostic criteria for hEDS, it seems like an Autism diagnosis wouldn’t account for the physical aspects of hEDS—things like hypermobility, tissue …
hEDS without stretchy skin? - Ehlers-Danlos Syndromes - Inspire
Jan 24, 2022 · Not everyone with hEDS has skin hyperextensibility. Skin manifestations are more common in classical EDS (cEDS). Usually if people with hEDS have skin hyperextensibility it is …
hEDS and electrolytes - Ehlers-Danlos Syndromes - Inspire
Nov 6, 2024 · I’m trying to understand the relationship between hEDS and electrolyte/hydration balance. What do you experience when electrolytes are low, and why
Peripheral Nueropathy hEDS - Ehlers-Danlos Syndromes - Inspire
Jul 10, 2025 · At the age of 49, (4 years after an official diagnosis of hEDS with marfanoid habitus), I have finally had a full neurological examination and EMG
Heds and Thoracic Outlet syndrome - Ehlers-Danlos Syndromes
May 17, 2018 · Hello Everyone, I was wondering how many eds patients experience TOS (thoracic outlet syndrome)? It started with contraction in the ring and picky
Doctors in Massachusetts? - Ehlers-Danlos Syndromes - Inspire
Jul 16, 2015 · I know there are a few doctors out in Boston at MassGeneral and Tufts that diagnose EDS-III, but are there any others? I was told I have Joint
I found a hypermobile EDS doctor in Oklahoma City
Mar 5, 2024 · I had trouble locating a doctor in the Oklahoma City area who was knowledgeable with connective tissue disorders, hypermobility, and hEDS until recently. The Venturis Clinic is ran by …
Steinberg's sign, positive or not and does a boderline ... - Inspire
Mar 23, 2019 · Be aware that if a person does not meet the diagnostic criteria for hEDS (and does not have another type of EDS, another genetic connective tissue disorder, or an autoimmune connective …
Holding a pen/pencil - Ehlers-Danlos Syndromes - Inspire
Jun 9, 2019 · How does everyone hold their pen or pencil? In 2nd grade I had this teacher who literally harassed me for the entire year about the way I hold my